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Welcome to the Connecticut Chapter of the American Parkinson Disease Association


Welcome to the new website for the Connecticut Chapter of the American Parkinson Disease Association. Our mission is to "Ease the Burden, To Find A Cure" for the people with Parkinson's Disease and their caregivers in Connecticut. Our goal is to provide education, support and socialization. Along with educational information found on our website will hold many event, both educational and social during the year and we hope there is something for everyone.

Along with our new website we have new contact information!

Please feel free to call: 860.248.9200 with any questions that maybe of concern to you.

You may email us at: MThibodeau@outlook.com

Our new mailing address is:

American Parkinson Disease Association- Connecticut Chapter

PO Box 718

Old Mystic, CT 06372

 

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Winter Support Group Schedule Changes


Wishing all our members a Happy Winter!

During the winter months some support groups change their monthly scheduled meeting times. Please check with the support group leader to confirm that your meetings will take place. A complete list of support group contacts can be found on this website by clicking the Support Group tab at the top of this page. For additional information you may call Mary Ellen at 860-248-9200


Many New Support Groups coming to Connecticut!



Support groups are a very helpful tool in navigating life with Parkinson's. The American Parkinson Disease Association Connecticut Chapter has many affiliated support groups through out Connecticut.  We have many new groups starting in the coming months!  These are intended as peer support groups that focus on education and fun! To find an APDA support group near you... 

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January 21st - The Willimantic Support Groups Learns About LSVT-LOUD!


The Willimantic Parkinson's Support Group is on the move! We will meet the third Wednesday each month at 1:00PM at Windham County Memorial Hospital's Family Health Center located at 5 Founders St. Parking at the rear of the building will bring you in on the correct floor. People with Parkinson's and their familiy and friends are invited to attend. This months lecture will focus on LSVT-LOUD a special speech therapy created just for Parkinson's disease!  For more information please contact our support group leader, Susan Monroe at 860-456-2862.


February 11th - CT APDA Chapter Board Meeting


The next meeting of the American Parkinson Disease Association Connecticut Chapter will be on on Wednesday, February 11th at 5:30 pm.  We meet at Atria Hamilton Heights in West Hartford the second Wednesday each month.  This meeting is open to the public and all are welcome.

Please call 860-248-9200 to let us know if you plan to attend, as the room can be changed to accommodate an increased attendance.

 

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February 20th - Dr J. Antonelle de Marcaida, MD Lectures at Ruth Chris Steakhouse in Newington


On Friday, February 20th, Dr J. Antonelle de Marcaida, MD from Eastern Connecticut Neurology will be our guest speaker at Ruth Chris Steakhouse at 2513 Berlin Turnpike Newington, CT.  Her Topic is "Living Well wiht PD: Understanding Parkinson's Disease and Current Treatments". This luncheon and lecture will begin at 12:00PM. Both the luncheon and presentation is sponsored by Teva NeuroScience. Reservations are required. Please RSVP to Mary Ellen at 860-248-9200.  Please leave your name, number of people attending, phone number and the event for which you are responding..the Ruth Chris Luncheon.

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February 24th- Dr Rahul Gupta lectures about "Memory Loss As We Age" at the Bridgeport Support Group


On February 24th, Dr Rahul Gupta will be the guest speaker at the Bridgeport Support Group. His Topic; "Memory Loss As We Age" will be followed by a question and answer session. The support group lecture will begin at 2:30PM at The Watermark at 3030 Park Ave, Bridgeport. For more information please contact Marlane at 203-373-6288. 

Please note the time change to 2:30 PM for this meeting!


February 27th- Dr Marisa Moro De Casillas lectures at JD Coopers in Putnam


On Friday, February 27th Dr Marisa Moro De Casillas, MD from Neurology Associates- Norwich will be our guest speaker at JD Coopers Restaurant 146 Park  Rd Putnam, CT. Her Topic is "Living Well with PD: Understanding Parkinson's Disease and Current Treatments". This luncheon and lecture will begin at 12:00PM. Both the luncheon and presentation is sponsored by Teva NeuroScience. Reservations are required. Please RSVP to Mary Ellen at 860-248-9200. Please leave your name, number of people attending, phone number and the event for which you are responding..JD Coopers.

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March 14th- NEW Deep Brain Stimulation Support Group in Guilford!!


Our new "Deep Brain Stimulation Support Group" will meet again on Saturday, March 14th at 10 am at the Guilford Public Library Conference Room, 67 Park St in Guilford. This will be a general discussion group for those who have had DBS and those who would like to learn more about it. It is a great opportunity to meet with health care professionals, patients who have already had DBS and those who are considering this treatment. Michael Hahn from Medtronic will be in attendance!  Please RSVP for this meeting to 860-248-9200.


March 16th- Dr Adam Simmons Lectures at Carmen Anthony Fishhouse in Woodbury


On Monday, March 16th, Adam Simmons, MD will be our guest speaker at Carmen Anthony Fish House, 757 Main St in Woodbury, CT. His Topic is "Living Well with PD: Understanding Parkinson's Disease and Current Treatments". This luncheon and lecture will begin at 12:30 PM. Both the luncheon and presentation is sponsored by Teva NeuroScience. Reservations are required. Please RSVP to Mary Ellen at 860-248-9200. Please leave your name, number of people attending, phone number and the event for which you are responding..the "Carmen Anthony Luncheon".

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March 18th- Dr de Marcaida Lectures at Max Amore in Glastonbury


On Wednesday, March 18th, Dr J. Antonelle de Marcaida, MD from Eastern Connecticut Neurology will be our guest speaker at Max Amore at 140 Glastonbury Blvd. Glastonbury, CT. Her Topic is "Living Well with PD: Understanding Parkinson's Disease and Current Treatments". This dinner and lecture will begin at 6:30PM. Both the dinner and presentation is sponsored by Teva NeuroScience. Reservations are required. Please RSVP to Mary Ellen at 860-248-9200. Please leave your name, number of people attending, phone number and the event for which you are responding..the Max Amore Dinner.

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Donations of Goods and Services


The Connecticut Chapter of the American Parkinson Disease Association is a non-profit 503 (c).

Before you purchase a large item such as a walker or wheelchair please give us a call. We may have someone who is willing to donate such an item directly to you.

Call our office at 860-248-9200 and we will put you in touch with the families who are donating.

Contributions of goods and services are just as valuable as a monetary donation. They save on costs which allows the  APDA Connecticut Chapter to operate efficiently and use the maximum amount of funds toward our mission to "Ease the Burden, To Find a Cure". Please contact us if you would like more information about contributing goods and/or services to the CT Chapter APDA.  860-248-9200.

Items needed:  Office supplies (paper, envelopes, ink) and a  laptop computer.

For more information about items that are needed or available...

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Dance class for Parkinson's in Guilford


 VNA Community Healthcare Wellness Center hosts a dance class for Parkinson's disease at their offices at 753 Boston Post Road.  The class is held on Mondays 10:45 AM – 12:00.  There is no charge for the class as it is sponsored by Rehab Concepts.  To register for the class, please call (203) 458-4351

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Current Research Opportunities


Many members of CT APDA have participated or are currently participating in research studies at varies sites. We will now maintain a list of ongoing research studies that are available for those who are interested. As researchers make us aware of new studies they will be added to our website. For additional information about participation.....

NEW! Parkinson's Cognition Study in New London!

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Dance for PD at three locations in CT! New group starting in New Haven!!


Dance for PD is a wonderful program exploring movement and helping Parkinson's families connect with others in a creative and joyful experience.  Classes are held on Mondays from 1:30-2:45 pm at the Middletown Senior Center, NEW Tuesday classes every other Tuesday form 1:30-2:45pm at the First Presbyterian Church, New Haven (call for date and time confirmation) and Wednesdays from 10:30 -11:45 am at Connecticut College, Crozier-Williams Building 2nd floor studio, New London, CT.  Classes are free to anyone with Parkinson's and his/her caregiver or partner. This program is sponsored by: Neighborhood Music School.  For more information....

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New Book-Making the Connection Between Brain and Behavior, Second Edition


Dr Joseph H. Friedman's new book is now available.

"Making the Connection Between Brain and Behavior, Second Edition"

The only complete and up-to-date book addressing the most common behavioral symptoms of Parkinson's Disease (PD), including depression, anxiety, hallucinations, disrupted sleep, and compulsive behavior. When people think about PD....

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New Book on DBS!


In past years some of you may have met Dr Kelvin Chou as he lectured at Symposiums in New England. He left Rhode Island a few years ago but clearly has been very busy. He has published a complete guide to Deep Brain Stimulation Surgery. Co-Authors include: Dr Patag Patel and Susan Grube, RN

The official title is:Deep Brain Stimulation Surgery: A New Life for People with Parkinson's, Dystonia and Essential Tremor

Many people who have had DBS have given this book a great review and recommend it to those considering DBS for their Parkinson's.  To learn more....

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"Welcome to Our World" by Pamela Quinn


Please enjoy this  award winning video created by a dancer/teacher Pamela Quinn who has Parkinson's and teaches a class in Brooklyn. It's a wonderful film and our own dance instructor Rachel Balaban  thought you would be interested in seeing it.

 http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3DjhxtqwHO9Tg%26feature%3Dplayer_profilepage&h=2bac8

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Living with Parkinson's Disease - Educational Video


It is with great pleasure that we can now bring you a wonderful video directed, filmed and edited by Evan Krueger. "Living with Parkinson's Disease" is a labor of love given  to the Parkinson's community by Evan, Dr Joseph Friedman, and Dr Janet Grace.  They were helped by many members of the Parkinson's community both medical professionals and patients alike.

To watch the 30 minute video clink on the link below:

Living with Parkinson's disease  

 http://vimeo.com/14337321

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CT APDA has a Facebook Group


Yes!! Connecticut APDA has it's own group on Facebook. Use this social networking site to meet others in CT and across the country who have or care about someone with Parkinson's disease. To learn more...

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Follow CT APDA on Twitter


The APDA Connecticut Chapter is now on Twitter! Follow us @CTAPDA

We will use Twitter to promote our chapter, support groups, educational and social events to our community. 


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