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Welcome to the Connecticut Chapter of the American Parkinson Disease Association


Welcome to the new website for the Connecticut Chapter of the American Parkinson Disease Association. Our mission is to "Ease the Burden, To Find A Cure" for the people with Parkinson's Disease and their caregivers in Connecticut. Our goal is to provide education, support and socialization. Along with educational information found on our website will hold many event, both educational and social during the year and we hope there is something for everyone.

Along with our new website we have new contact information!

Please feel free to call: 860.248.9200 with any questions that maybe of concern to you.

You may email us at: MThibodeau@outlook.com

Our new mailing address is:

American Parkinson Disease Association- Connecticut Chapter

PO Box 718

Old Mystic, CT 06372

 

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May 8th- 2 Free WEBINARS in conjunction with the "Within Our Reach" Symposium


Within Our Reach (WoR), The University of Maryland Annual Parkinson's Disease Symposium" is their yearly patient and caregiver educational symposium sponsored by the Maryland Parkinson's Disease and Movement Disorders Center of the University of Maryland School of Medicine, and the American Parkinson Disease Association (APDA). It will be held on Friday, May 8, 2015, from 8:30 am to 2:30 pm at the BWI Airport Marriott.

To reach the registration for the free webinars click this link:

http://umm.edu/programs/parkinsons/within-our-reach-symposium


May 9th - NEW Deep Brain Stimulation Support Group in Guilford!!


Our new "Deep Brain Stimulation Support Group" will meet again on Saturday, May 9th at 10 am at the Guilford Public Library Conference Room, 67 Park St in Guilford. This will be a general discussion group for those who have had DBS and those who would like to learn more about it. It is a great opportunity to meet with health care professionals, patients who have already had DBS and those who are considering this treatment. Michael Hahn from Medtronic will be in attendance!  Please RSVP for this meeting to 860-248-9200.


May 13th - CT APDA Chapter Board Meeting


The next meeting of the American Parkinson Disease Association Connecticut Chapter will be on on Wednesday, May 13th at 5:30 pm.  We meet at Atria Hamilton Heights in West Hartford the second Wednesday each month.  This meeting is open to the public and all are welcome.

Please call 860-248-9200 to let us know if you plan to attend, as the room can be changed to accommodate an increased attendance.

 

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May 15th - Dr Adam Simmons, MD Lectures at Ruth Chris Steakhouse in Newington


On Friday, May 15th, Dr J. Antonelle de Marcaida, MD from The Hospital for Special Care will be our guest speaker at Ruth Chris Steakhouse at 2513 Berlin Turnpike Newington, CT.  His Topic is "Living Well wiht PD: Understanding Parkinson's Disease and Current Treatments". This luncheon and lecture will begin at 12:00PM. Both the luncheon and presentation is sponsored by Teva NeuroScience. Reservations are required. Please RSVP to Mary Ellen at 860-248-9200.  Please leave your name, number of people attending, phone number and the event for which you are responding..the Ruth Chris Luncheon.

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May 15-16th - LSVT Certification Workshops in Wallingford CT


Masonicare will be hosting an LSVT BIG & LOUD Training and Certification Workshops at the Hartog Auditorium at Ashlar Village, Wallingford, CT for all PT, OT and speech -language pathologists.

The LSVT LOUD Training and Certification Workshop is a two-day program designed to train speech-language pathologists in a voice/speech treatment technique for adults and children with motor speech disorders, with a specialty in Parkinson disease.

The LSVT BIG Training and Certification Workshop is a two-day program designed to train physical and occupational therapy professionals and
students in an intensive whole body amplitude-based training protocol for individuals with Parkinson disease. 

Workshop Location:
Masonicare
Hartog Auditorium at Ashlar Village
74 Cheshire Road
Wallingford, CT 06492

For more information and to register for these educational opportunities please go to:

http://www.masonicare.org/#


May 18th- New "Day Time" Parkinson's Support Group Starts in Woodbridge


CT APDA is proud to announce the start of a second new Parkinson's Support Group in Woodbridge. Currently we have a wonderful evening support group that meets at The Willows and now a day time support group is beginning at Coachman Square. On Monday,May 18th at 11:00 AM our new group at Coachman Square will hold its first meeting.  They will continue to meet the third Monday each month at 11:00AM. For more information about this meeting please call Mary Ellen at 860-248-9200 or check out the location and details under the support group tab at the top of this page. 


May 19th- Olio's Restaurant Luncheon Lecture with Dr Maria Moro de Casillas


On Tuesday, May 19th, Dr Maria L. Moro de Casillas, MD will be our guest speaker at Olio's Restaurant at 33 Kings Highway, Groton, CT.  Her Topic is "Treatment Updates in Parkinson's Disease". This luncheon and lecture will begin at 12:00 PM. Both the luncheon and presentation is sponsored by Teva NeuroScience. Reservations are required. Please RSVP to Mary Ellen at 860-248-9200. Please leave your name, number of people attending, phone number and the event for which you are responding..the "Olio Luncheon".

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May19th - Dr Srinath Kadimi Lectures at Oak & Almond Restaurant in Norwalk


On Tuesday, May 19th, Dr Srinath Kadimi will be our guest speaker at Oak & Almond Restaurant, 544 Main Ave, Route 7 in Norwalk, CT. His Topic is "Managing Parkinson's Disease". This dinner and lecture will begin at 6:30 PM. Both thedinner and presentation is sponsored by US World Meds. Reservations are required. Please RSVP to Mary Ellen at 860-248-9200. Please leave your name, number of people attending, phone number and the event for which you are responding..the "Oak & Almond Dinner".

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May 22nd- An Evening with Rich Clifford Lt Col, NASA Astronaut


Lieutenant Colonel Rich Clifford is a retired US Astronaut and passionate advocate and activist for Parkinson's Disease. He is also a patient since he was first diagnosed in 1994. He will be lecturing at the Talcott Mountain Science Center on Friday, May 22, 2015 at 7:00PM. He will be speaking about his experience at NASA and the space shuttle. For more information about how to register for this event, please check out their brochure.......

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May 26th- New "YOUNG ONSET" Support Group begins in Glastonbury!


CT APDA is proud to announce the start of a "Young Onset (and young at heart") Parkinson's Support Group for the Glastonbury area! We will meet at Healthtrax, 622 Hebron Ave Suite 200 Glastonbury, CT. Our next meeting will be Tuesday,May 26th at  6:30 PM. People with "Young Onset" Parkinson's and their familiy and friends are invited to attend. For more information........


June 21st - Branford Road Race Supports CT APDA!!


SUNDAY, JUNE 21, 2015 10:15 AM
The American Parkinson Disease Association Connecticut Chapter is pleased to announce that we have been selected as one of the primary charities for the 35th Annual Branford Road Race! This means that your donations to APDA made in conjunction with the Branford Road Race will promote awareness of Parkinson's disease in Connecticut, provide educational opportunities and support groups for members and raise funds for both patient care services and APDA funded national research. Please show your support for CT APDA and the Branford Road Race by running in their fabulous race, walking their fun walk or make a donation to CT APDA on line! For more information.....

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UCONN Study seeks participants


You are invited to participate in a study on measurements of trunk posture in Parkinson's disease. Patients with Parkinson's disease often display a stooped posture which may impair their daily functions. To learn more about this study and how to participate please see the attached brochure.

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Donations of Goods and Services


The Connecticut Chapter of the American Parkinson Disease Association is a non-profit 503 (c).

Before you purchase a large item such as a walker or wheelchair please give us a call. We may have someone who is willing to donate such an item directly to you.

Call our office at 860-248-9200 and we will put you in touch with the families who are donating.

Contributions of goods and services are just as valuable as a monetary donation. They save on costs which allows the  APDA Connecticut Chapter to operate efficiently and use the maximum amount of funds toward our mission to "Ease the Burden, To Find a Cure". Please contact us if you would like more information about contributing goods and/or services to the CT Chapter APDA.  860-248-9200.

Items needed:  Office supplies (paper, envelopes, ink) and a  laptop computer.

For more information about items that are needed or available...

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Dance class for Parkinson's in Guilford


 VNA Community Healthcare Wellness Center hosts a dance class for Parkinson's disease at their offices at 753 Boston Post Road.  The class is held on Mondays 10:45 AM – 12:00.  There is no charge for the class as it is sponsored by Rehab Concepts.  To register for the class, please call (203) 458-4351

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It's Spring...Time to Dance! Dance for PD at three locations in CT!


Dance for PD is a wonderful program exploring movement and helping Parkinson's families connect with others in a creative and joyful experience.  Classes are held on Mondays from 1:30-2:45 pm at the Middletown Senior Center. On every other Tuesday from 1:30-2:45pm at the First Presbyterian Church, New Haven (call for date and time confirmation) and Wednesdays from 10:30 -11:45 am at Connecticut College, Crozier-Williams Building 2nd floor studio, New London, CT.  Classes are free to anyone with Parkinson's and his/her caregiver or partner. This program is sponsored by: Neighborhood Music School.  For more information....

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Current Research Opportunities


Many members of CT APDA have participated or are currently participating in research studies at varies sites. We will now maintain a list of ongoing research studies that are available for those who are interested. As researchers make us aware of new studies they will be added to our website. For additional information about participation.....

NEW! Parkinson's Cognition Study in New London!

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New Book-Making the Connection Between Brain and Behavior, Second Edition


Dr Joseph H. Friedman's new book is now available.

"Making the Connection Between Brain and Behavior, Second Edition"

The only complete and up-to-date book addressing the most common behavioral symptoms of Parkinson's Disease (PD), including depression, anxiety, hallucinations, disrupted sleep, and compulsive behavior. When people think about PD....

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New Book from the Caregiver Perspective by Martin Soloway


Martin Soloway graduated from the University of Connecticut in 1955 with a BS in pharmacy. He has had an extensive career in his chosen field. He owned several pharmacies, established a retail pharmacy in a community hospital, and was COO of the Connecticut branch of Omnicare, one of the largest long-term providers of pharmacy services to nursing homes in United States. He won a national writing contest and was on the cover of the trade journal Drug Topics. Marty has been married to his college sweetheart, Sondra, for fifty-eight years and has two children and four grandchildren. He has lived been in Orange, Connecticut, for fifty years. Marty now writes about Parkinson's disease both from professional and personal-caregiver perspective in his new book, The Bastard Disease. Follow Martin along his twenty plus years as a caregiver dealing with a loved ones health issues, doctors, medications and the ongoing frustrations that some caregivers face.  Click through to find a link to Amazon and preview Chapter One.   

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"Shake, Rattle & Roll With It: Living & Laughing with Parkinson's" by Vikki Clafin


Vikki chonicles her hilarious and ofter poignant journey, dealing with Parkinson's Disease with her usual irreverance and laughter. Whether she is chasing her Chihuahuha or learning to pole dance in her living room, Vikki will have you laughing and crying at the same time. Reviews include: "There is nothing funny about Parkinson's. Until there is. Vikki Claflin makes you laugh when you feel like crying. Shake, Rattle & Roll With It is a blueprint for getting through the often painful turns in life with grace, fortitude, and thank God, a wicked sense of humor." - Kathleen O'Donnell, author.

Vikki has been featured on many websites, Erma Bombecks's Writer's Workshop, The Huffington Post, Scary Mommy, Generation Fabulous to name just a few!

We will soon have a copy in our lending library or you can obtain a copy on Amazon.com


New Book on DBS!


In past years some of you may have met Dr Kelvin Chou as he lectured at Symposiums in New England. He left Rhode Island a few years ago but clearly has been very busy. He has published a complete guide to Deep Brain Stimulation Surgery. Co-Authors include: Dr Patag Patel and Susan Grube, RN

The official title is:Deep Brain Stimulation Surgery: A New Life for People with Parkinson's, Dystonia and Essential Tremor

Many people who have had DBS have given this book a great review and recommend it to those considering DBS for their Parkinson's.  To learn more....

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"Welcome to Our World" by Pamela Quinn


Please enjoy this  award winning video created by a dancer/teacher Pamela Quinn who has Parkinson's and teaches a class in Brooklyn. It's a wonderful film and our own dance instructor Rachel Balaban  thought you would be interested in seeing it.

 http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3DjhxtqwHO9Tg%26feature%3Dplayer_profilepage&h=2bac8

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Living with Parkinson's Disease - Educational Video


It is with great pleasure that we can now bring you a wonderful video directed, filmed and edited by Evan Krueger. "Living with Parkinson's Disease" is a labor of love given  to the Parkinson's community by Evan, Dr Joseph Friedman, and Dr Janet Grace.  They were helped by many members of the Parkinson's community both medical professionals and patients alike.

To watch the 30 minute video clink on the link below:

Living with Parkinson's disease  

 http://vimeo.com/14337321

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CT APDA has a Facebook Group


Yes!! Connecticut APDA has it's own group on Facebook. Use this social networking site to meet others in CT and across the country who have or care about someone with Parkinson's disease. To learn more...

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Follow CT APDA on Twitter


The APDA Connecticut Chapter is now on Twitter! Follow us @CTAPDA

We will use Twitter to promote our chapter, support groups, educational and social events to our community. 


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