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Welcome to the Connecticut Chapter of the American Parkinson Disease Association


Welcome to the new website for the Connecticut Chapter of the American Parkinson Disease Association. Our mission is to "Ease the Burden, To Find A Cure" for the people with Parkinson's Disease and their caregivers in Connecticut. Our goal is to provide education, support and socialization. Along with educational information found on our website will hold many event, both educational and social during the year and we hope there is something for everyone.

Along with our new website we have new contact information!

Please feel free to call: 860.248.9200 with any questions that maybe of concern to you.

You may email us at: MThibodeau@outlook.com

Our new mailing address is:

American Parkinson Disease Association- Connecticut Chapter

PO Box 718

Old Mystic, CT 06372

 

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1st Annual Westport Optimism Walk for Parkinson's Disease on October 18th!!


The American Parkinson Disease Association Connecticut Chapter

Welcomes you to the 1st Annual Westport Optimism Walk for Parkinson's Disease

in Memory of James E. Munson

Registration is now open!!

Each year, the Connecticut Chapter of the APDA will hold this event to help raise money to support scientific research into the cause and cure of Parkinson's disease and to support families living with this disease. Whether you are able to join us, sponsor us, or support a beautiful event, we thank you for your participation. The event is a 1.5 Mile Walk, however walkers can walk any part of this or choose to enjoy the beautiful day and the many other activities.

Registration will begin at 10 am on Saturday, October 18th at Sherwood Island, Sherwood Island Conncetor in Westport, CT. Come out for a fun-filled, family day and make a difference in the lives of those with Parkinson's disease! The day will include a Full Picnic, Children's Games, Raffles, and so much more!

For more information click on the "Our Walks" tab at the top of this page!


1st Annual Waterford Optimism Walk for Parkinson's Disease


THANK YOU TO ALL WHO HELPED MAKE OUR 1ST WATERFORD OPTIMISM WALK SUCH A SUCCESS!!!

We raised over $18,000 dollars and had great fun! See you next year!

Check out information about our 1st Annual Westport Optimism Walk coming in October at the "Walk" tab above!

The American Parkinson Disease Association Connecticut Chapter

Welcomes you to the 1st Annual Waterford Optimism Walk for Parkinson's Disease

in Memory of Dr. Albert Weissman

Presenting Sponsor

Each year, the Connecticut Chapter of the APDA will hold this event to help raise money to support scientific research into the cause and cure of Parkinson's disease and to support families living with this disease. Whether you are able to join us, sponsor us, or support a beautiful event, we thank you for your participation. The event is a 1.5 Mile Walk, however walkers can walk any part of this or choose to enjoy the beautiful day and the many other activities.

Registration will begin at 10 am on Saturday, July 19th at Camp Harness, 301 Great Neck Rd in Waterford, CT. Come out for a fun-filled, family day and make a difference in the lives of those with Parkinson's disease! The day will include a Full Picnic, Children's Games, Raffles, and so much more!


August 13th - CT APDA Chapter Board Meeting


The next meeting of the American Parkinson Disease Association Connecticut Chapter will be on on Wednesday, August 13th at 5:30 pm.  We meet at Atria Hamilton Heights in West Hartford the second Wednesday each month.  This meeting is open to the public and all are welcome.

Please call 860-248-9200 to let us know if you plan to attend, as the room can be changed to accommodate an increased attendance.

 

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August 19th - New Support Group begins at Benchmark at Split Rock - Shelton, CT


On Tuesday, August 19th at 3:00PM the  "NEW" Parkinson's Support Group at Benchmark at Split Rock in Shelton will meet again!  Join us and learn about current trends in treatment of Parkinson's disease while meeting others from your community. This group will meet the third Tuesday each month at 3:00 PM. For more information please contact Theresa Waldron-Yancoskie at 203-929-1111


September 13th- Dr Machado and Dr Gerrard Lecture at Greenwich Hospital


On September 13th, Greenwich Hospital will host a lecture with both Dr Machado and Dr Gerrard.  Dr Machado's lecture will be: "Parkinson's from the Movement Disorder Neurologist: A deeper dive into the newest treatments for Parkinson's".  Dr Gerrard's lecture will be: "Advances in Surgical Intervention for Parkinson's Disease".  A light breakfast and refreshments will be served. For more information on how to register, please check out the flyer....

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September 30th- New "YOUNG ONSET" Support Group forming in Westport!


Please join us at the first meeting of "Shakers Anonymous", a Parkinson's Support Group for people with Young Onset (65 and under) Parkinson's disease. We will meet at the Westport Library,  20 Jesup Road on Tuesday, September 30th from 7-9PM. People with Parkinson's and their familiy and friends are invited to attend. RSVP's are required for the first meeting . Please RSVP to.....

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November 2 & 3 New England Regional Parkinson's Conference


Save the Date  November 2 & 3, 2014

New England Regional Parkinson's Conference

Holiday Inn Mansfield, MA

Save the date! This 2 day conference is designed to educate and inspire people with Parkinson's and those who care about them with speakers, workshops,exhibitors, caring and sharing-including a Sunday Evening Social! Mark your calendars now!

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Gladys Tiedemann


The APDA Connecticut Chapter would like to acknowledge the passing of Gladys Tiedemann, long time CT Chapter President and APDA National Board Member. Gladys was a devoted volunteer who raised significant awareness of the needs of the person living with Parkinson's and their family members. Our sympathy to the Tiedemann family and all of the people she touched.

For more information about Gladys' life long service to APDA and memorial services....

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Summer Schedule


Some of our support groups...have taken some time off for the summer. While others will continue through the summer.

Please call the support group leaders to confirm meeting times and places! That information can be found.....

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Summer is Here! Remember to have your yearly skin check!


Summer is here and it is time to remind all our CT APDA members to have a yearly skin check and always reach for the sun screen! People with Parkinson's are at higher risk for Malignant Melanoma. Click through to learn the ABC's of Melanoma and read more about Melanoma .....

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PD Exercise Instructors- Your help is needed!


In the next few weeks, the Department of Physical Therapy at the University of Connecticut will be sending out a research survey that focuses on gathering information on both a statewide and national level on the structure and intensity of Parkinson's exercise classes available to individuals with Parkinson's in each state. The end goal of our research is to provide an effective representation for each state of the exercise classes available for Parkinson's patients. Therefore, if there are any Parkinson's exercise class instructors who would like to lend assistance in providing more information about their classes in a short survey that will be sent out it would be greatly appreciated. Our goal is to capture the input and feedback from as many Parkinson's exercise class instructors in each state as possible to ensure that each state and region of the United States is equally and effectively represented in the research publication that will result from this research study.

For more information about the study please contact Tim Isselee at the University of Connecticut:  tim.isselee@uconn.edu.


Many New Support Groups coming to Connecticut!



Support groups are a very helpful tool in navigating life with Parkinson's. The American Parkinson Disease Association Connecticut Chapter has many affiliated support groups through out Connecticut.  We have many new groups starting in the coming months!  These are intended as peer support groups that focus on education and fun! To find an APDA support group near you... 

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Guilford- VNA Community Healthcare Support Groups join with CT APDA


It is with great pleasure that we announce that VNA Community Healthcare of Guilford's Parkinson's Support Groups are joining our American Parkinson Disaese Association, Connecticut Chapter's network! It is clear that VNA Communtiy Healthcare has always placed a priority on Parkinson's care.  They have been providing both a Parkinson's and a PD Caregiver support groups along with Parkinson's exercise and dance classes. For more information about these support groups and classes.....

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Dance class for Parkinson's in Guilford


 VNA Community Healthcare Wellness Center hosts a dance class for Parkinson's disease at their offices at 753 Boston Post Road.  The class is held on Mondays 10:45 AM – 12:00.  There is no charge for the class as it is sponsored by Rehab Concepts.  To register for the class, please call (203) 458-4351

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Breaking News


This new section on our website will keep you up to date on the latest articles found on the internet regarding Parkinson's disease. Just follow through to the next page and click on the links provided to be taken to articles of interest....

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Current Research Opportunities


Many members of CT APDA have participated or are currently participating in research studies at varies sites. We will now maintain a list of ongoing research studies that are available for those who are interested. As researchers make us aware of new studies they will be added to our website. For additional information about participation.....

NEW! Parkinson's Cognition Study in New London!

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Dance for PD at three locations in CT! New group starting in New Haven!!


Dance for PD is a wonderful program exploring movement and helping Parkinson's families connect with others in a creative and joyful experience.  Classes are held on Mondays from 1:30-2:45 pm at the Middletown Senior Center, NEW Tuesday classes every other Tuesday form 1:30-2:45pm at the First Presbyterian Church, New Haven (call for date and time confirmation) and Wednesdays from 10:30 -11:45 am at Connecticut College, Crozier-Williams Building 2nd floor studio, New London, CT.  Classes are free to anyone with Parkinson's and his/her caregiver or partner. This program is sponsored by: Neighborhood Music School.  For more information....

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New Book-Making the Connection Between Brain and Behavior, Second Edition


Dr Joseph H. Friedman's new book is now available.

"Making the Connection Between Brain and Behavior, Second Edition"

The only complete and up-to-date book addressing the most common behavioral symptoms of Parkinson's Disease (PD), including depression, anxiety, hallucinations, disrupted sleep, and compulsive behavior. When people think about PD....

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New Book on DBS!


In past years some of you may have met Dr Kelvin Chou as he lectured at Symposiums in New England. He left Rhode Island a few years ago but clearly has been very busy. He has published a complete guide to Deep Brain Stimulation Surgery. Co-Authors include: Dr Patag Patel and Susan Grube, RN

The official title is:Deep Brain Stimulation Surgery: A New Life for People with Parkinson's, Dystonia and Essential Tremor

Many people who have had DBS have given this book a great review and recommend it to those considering DBS for their Parkinson's.  To learn more....

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"Welcome to Our World" by Pamela Quinn


Please enjoy this  award winning video created by a dancer/teacher Pamela Quinn who has Parkinson's and teaches a class in Brooklyn. It's a wonderful film and our own dance instructor Rachel Balaban  thought you would be interested in seeing it.

 http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3DjhxtqwHO9Tg%26feature%3Dplayer_profilepage&h=2bac8

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Living with Parkinson's Disease - Educational Video


It is with great pleasure that we can now bring you a wonderful video directed, filmed and edited by Evan Krueger. "Living with Parkinson's Disease" is a labor of love given  to the Parkinson's community by Evan, Dr Joseph Friedman, and Dr Janet Grace.  They were helped by many members of the Parkinson's community both medical professionals and patients alike.

To watch the 30 minute video clink on the link below:

Living with Parkinson's disease  

 http://vimeo.com/14337321

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Donations of Goods and Services


The Connecticut Chapter of the American Parkinson Disease Association is a non-profit 503 (c).

Before you purchase a large item such as a walker or wheelchair please give us a call. We may have someone who is willing to donate such an item directly to you.

Call our office at 860-248-9200 and we will put you in touch with the families who are donating.

Contributions of goods and services are just as valuable as a monetary donation. They save on costs which allows the  APDA Connecticut Chapter to operate efficiently and use the maximum amount of funds toward our mission to "Ease the Burden, To Find a Cure". Please contact us if you would like more information about contributing goods and/or services to the CT Chapter APDA.  860-248-9200.

Items needed:  Office supplies (paper, envelopes, ink) and a  laptop computer.

For more information about items that are needed or available...

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CT APDA has a Facebook Group


Yes!! Connecticut APDA has it's own group on Facebook. Use this social networking site to meet others in CT and across the country who have or care about someone with Parkinson's disease. To learn more...

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Follow CT APDA on Twitter


The APDA Connecticut Chapter is now on Twitter! Follow us @CTAPDA

We will use Twitter to promote our chapter, support groups, educational and social events to our community. 


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